Monday, February 25, 2008

Results

We have the results back from the PET. Everything looks good. He onlys has it in the upper chest area and neck. Nothing has spread to other organs. The bx results are back also. He has Mantle Cell Lyphoma with 20% in the bone marrow. Mantle cell is a rare type of Lymphoma with only 8% having this. It doesn't respond well to conventional Chemo. But with the new chemo with a combo of the Monoclonial Antibodies are working wonders. We have appointment with Dr. Barlet on March 5 unless they have a cancellations this week. I will be calling them Tuesday to see.

I spoke with Demi Adams this weekend. If you did not know, she had Non hodkins Lymphoma T cell. Her Doctor is Dr. Barlet. Thank fully she is in remission. Any how She was told the Dr. Barlet is the LYmphoma Queen. So my research was correct. It is always nice to know you did the right thing. She can't say anything bad about her or Barnes. Her experience and treatment by staff was wonderfull.

Bob will definatly have to have chemo. But we won't know the cycle until we talk to Dr. Barlet.
It will either every 14 or 21 days for at least 4 months. After that or during this he will get a Total body radiation. This is not like getting normal radiation. This will be thru a pill he takes. It is about a week process. They have to give him med. to block his thyroid and take images to make sure the radiation will be going to the correct place before giving the radiation.

Keep him in your prayers. As soon as we talk to Dr. Barlet I will keep you informed.

Wednesday, February 20, 2008

Test

Bob had his PET scan yesterday. This should be read today. We will then send the PET and CT down to Barnes. WE are still waiting on the results from the bx. They were sent to Nickols lab in Calinforia. This takes approximently two weeks. Hopefully, we should have all result back by next week. As I told Bob, in the beginning with all these test takes awhile to get going. Once all the test and results are back. Thing will start rolling. The Pathologist told Bob during his bone marrow bx that he is pretty sure it is Mantle cell Lymphoma. I have sent up a link to the Mantle cell website. We will know more once we talk to Dr. Bartlet.

Thursday, February 14, 2008

New Diagnosis

On Wenesday Feb. 7, Craig's father went to the Doctor. They found several enlarge lymph nodes in his neck. Of course the go getter I am, I got Bob in for a CT of the neck and chest the following day. This gave us information that we are looking at lymphoma.

On the following day, Bob had a biopsy on his tonsils. They took out the right side. Dr. Billiter stills says this is a classic case of Lymphoma. The problem with Lymphoma their are two main types. You have Hodgkins and NonHodgkins Lymphoma. Under these types, you then have approximently 4o subtypes of cancer.

Yesterday, Bob had a Bone Marrow Bx. We are now currently waiting for the result of both Bx. Until we know what type they can't begin treatment. He did have a consult with Dr. Zimmer (who is a local Oncologist).

I have been in contact with Barnes Sitman Cancer Center. We are currently working with them to have an appointment with Dr. Barlet. She is a Oncologist that specializes in Lymphoma -Hodgkins and Nonhodgkins, Bone marrow Transplant and Stem Cell.

I have scheduled a PET Scan for tuesday Feb. 19. I will then send both the CT and PET to Barnes. When we get the results from the bx, we will then have them send the slides to Barnes. The Doctor will then look over the results. An appointment will then be scheduled for consult. This will take approximently two weeks.

If you know me, It will be hard for me to wait. I won't sit still until I know everything is OK. I will keep on it until it is taken care of. I will have to learn patience with this.

We will keep you update.



PLEASE KEEP HIM IN YOUR PRAYERS.